All posts by Pattie Dash

Kidney Story: Captain Dee-Fense

Kidney Walk Participant and Supporter

I was diagnosed with Stage 3 CKD on January 21, 2009 after getting some routine lab work completed. It was evident that my Serum Creatinine levels just weren’t right.  I had some type of kidney problems when I was very young but I didn’t’ know exactly what.  The thing I really noticed was the Gout attacks were happening more frequent due to elevated uric acid level. The doctor told me that he thought I had some degree of hypertensive nephrosclerosis also due to some medications I was taking like Motrin and Indocin. The Motrin and Indocin were for the Gout attacks.  He switched my Gout medicine to Colchine.  He also told me the blood pressure medicine I was talking, Lisinopril can have a reversible affect on Creatinine levels. But since it was controlling my blood pressure and I was tolerant of it, he recommended I stayed on it.

I’m a very positive person and by nature, I knew my attitude would be paramount in dealing with this “minor inconconvience as I refer to it.  I dealt with cancer so I had a reference point. Attitude is 80 percent of dealing with anything. I can control my attitude so I can control CKD. If I wake up, it’s a good day which means my good days are easily achieverable. My good days aren’t tied to money or material things.

One thing I do daily is listen to or read something “positive”” the first 15 minutes of the day. A video, tape or whatever,  it sets my whole day up. Listing to news the first thing in the morning wasn’t conductive to starting my day in a positive mode.

Okay, I have  CKD, what am I going to do about? My motto has always been in dealing with problems, acknowledge it, and Fix it, Move.  I had to come up with a CKD (SIP) Self Improvement Plan.

The first thing I do was to read up on it and find exactly what CKD means and what my options were. At the end of the day, the doctors wouldn’t solve this; it would be me because it’s my responsibility.  I had to do whatever to help my buddy, my kidney.  I knew It couldn’t be cured it but I could lessen the damage it was doing to my buddy. High Blood pressure was at the lot of the list for controlling CKD which I pretty much had under control. Lifestyle changes such as losing weight, exercising, and meditating, eating less salt and drinking less alcohol can help lower your blood pressure.  I never add salt to anything now and it doesn’t bother me. Drinking alcohol and salt weren’t necessary to my well being anyway so they were easy.

I came up with a plan that could work for me.  I started going to the gym.  I’m not a diet person because that would imply that it would be temporary which in reality it would be for the rest of my life.  I had what I call my 1=4 theory. Because I go to the gym, it controls my Blood Pressure, Cholesterol and Glucose level and weight.

The next thing I did was to start using the “Live Strong” App. I started on 2000 a day calories that was just a baseline. I wasn’t totally “married” to that amount.  It measures Calories, fat, Cholesterol, Sodium, Carbs, Fiber, Protein and Sugar. Everything I eat in a day, it tells me exactly what I consumed. The Sodium level is 2400MG. It takes me about 10 minutes to put everything in there. I can tell you how much Sodium I’ve consumed in 2016. For the month of April, I consumed 27478 or 2498 per day.  Using this APP gave me a snapshot into exactly what my buddy was seeing. Someone told me that “it would take too much time for me” I told them, I can make 10 minutes time to help my buddy and save my life. Because I learned that if we analyze our life over 2 weeks, we will realize that there are small changes that can make that we can that can make a big difference.  The app showed me that just a Big Mac has 540 calories and 960mg sodium. That is 1/4 of my calories and almost 1/2 of my sodium allowance for the day.

Since CKD doesn’t have outward symptoms, I had to get something as a constant reminder for me that I had CKD so that I wouldn’t forget.   We sometimes forget that we have it. So I put a rubber band on my right wrist. In other words, the rubber band is my buddy. When I’m eating or wherever I’m doing, it’s a constant reminder. Anything I eat, I see and pull the rubber band. I’ll ask myself. Is for good for my buddy, my kidney? Maybe I’ll only eat half or none at all.

Being Captain Dee-Fense gave me the  platform I have. I had to figure out what God has placed here for me to do with to the best of my abilities. It took me awhile but I finally found my Life Purpose; to help, motivate and inspire people whenever possible, thereby giving my life a sense of fulfillment and happiness.

I attend several charity events a year. Relay for Life, Mother against Drunk Drivers, Lupus, Autism and Kidney disease and many more.  I’ve visit people on the cancer ward at Johns Hopkins. I also volunteer at 7 Senior Centers.

If I can somehow put a face on CKD and help to Inspire and motivate people to take control and take responsibility for making life long lasting changes, that I must do., it’s a no brainer.

 

At the end of the day, my life will be judge on what I do for others.

I am only one, but I am one. I cannot do everything, but I can do something. And I will not let what I cannot do interfere with what I can do”. ~Edward Everett Hale

 

I wondered why somebody didn’t do something. Then I realized, I am somebody!

Join the Kidney Walk by Registering Here

Kidney Story: Amari Luster

Team Captain of Molly’s Monsters for the Kidney Walk

This amazing family/friends have been participating in the Kidney Walk for 5 years now. They came up with the name Molly’s Monsters when she was sick and would say, ” The monsters are good monsters and they’re trying to make me better.”  

Here is her story:

“Amari was diagnosed with hydronephrosis when she was born her right kidney was in large the first year of her life was spent on antibiotics and lots of testing to check the urine flow bladder and kidney function.

Amari had surgery done on May 9th 2013 a month after her first birthday to remove the bottom right part of the enlarged kidney. Since then and has been up and down. Whenever she has a fever we have to make sure it’s not her kidneys. Which causes us to have to go through a lot of urine samples, X-rays and blood work.

As a mom it is very tough at times knowing that there is something going on in your child’s body that you have no control over. Especially when she gets fevers and they won’t break with Tylenol or Ibuprofen and you just have to wait for the antibiotic to kick in to get some type of relief.

We also do the walk because I lost my grandmother Christine (she passed away before I was born) to kidney failure and I had my Aunt Shirley passed away from kidney cancer. I also have a cousin Davon Steele and a friend Mykeisha Staton who are both on dialysis and waiting on the Kidney donor list.”

Join Molly’s Monsters at this years Kidney Walk to help them in our mission to end kidney disease.

Register Here

Watch Out For Trouble

Signs your kidneys or heart are in trouble!

  1.   Puffy eyes

    If your eyes are consistently swollen, especially in the morning, take note. This has been linked with kidney and heart disease.Because puffy eyes are linked with many other conditions, kidney disease and heart disease are often overlooked.

  2.   High blood pressure

    High blood pressure (hypertension) is a leading cause of heart attacks, strokes and chronic kidney disease. Controlling high blood pressure by losing excess weight, exercising, not smoking, cutting back on salt intake and taking high blood pressure medications reduces the risk of these complications. Even borderline high blood pressure, or pre-hypertension, should be taken seriously, as it can inflict kidney damage.

  3.   Swelling around your extremities

    The kidneys filter wastes from the blood and remove excess water from the body via urine. When the kidneys aren’t doing their job, this fluid can stay in the system instead of being excreted. Swelling around the hands, feet, and ankles may be associated with kidney or heart failure and shouldn’t be dismissed.

  4.  Protein or blood in the urine

    Urinalysis or urine testing is used to look for abnormalities such as an excess amount of protein, blood, pus, bacteria or sugar. A urine test can help to detect a variety of kidney and urinary tract disorders, including chronic kidney disease, diabetes, bladder infections and kidney stones. A trace of one type of protein, albumin in urine (albuminuria) is an early sign of chronic kidney disease. Persistent amounts of albumin and other proteins in the urine (proteinuria) indicate kidney damage. The presence of albumin is also a risk factor for cardiovascular events and death.

 

 

Sante 2018: Restaurant Winners

Restaurant Winners: Sante 2018

On March 15, 2018 the NKFMDDE brought back their beloved event Sante were our guests had the opportunity to try amazing food from local Baltimore chefs and vote on what they enjoyed most along with celebrity judges. The categories that our guests voted on were: Best Overall, People’s Choice, Most Creative Dish, and Best Dessert.

  1. Best Overall went to Copper Kitchen who served House-Made Porchetta grilled rapini, pistachio pesto garlic & chili jus.
  2. People’s Choice went to Cunningham’s who served Country fried chicken thighs with corn bread croutons and smokey cayenne honey butter. 
  3. Most Creative Dish went to George Martins GrillFire who served Green Eggs and Ham- truffle egg yolks, bread and butter pickles, crispy prosciutto, lava salt, and Guinness reduction.
  4. Best Dessert went to Fresh Fork Kitchen who served Sous vide cheesecake with a Meringue mouse and marshmallow S’mores Panna Cotta. 

Thank you to all of the restaurants that participated in these wonderful evening! We are excited to see who will participate and be our winners next year.

NKFMDDE Corporate Breakfast – Don’t Miss Out – April 12th

Location:  T. Rowe Price – 4435 Painters Mill Road – Building 6 – Owings Mills
Time:  7:30am – 9:30am

The National Kidney Foundation is the largest, most comprehensive and longstanding organization
dedicated to the awareness, prevention and treatment of kidney disease in the U.S.

We take an activist approach to ensure better outcomes for the 30 million Americans impacted by kidney disease through
diagnosis, treatment and support.

We are committed to expanding the cultural conversation from kidney disease to kidney health, and we educate the
public on preventing kidney disease before it starts.

Come out and join us to learn how you and your company can make a
difference in our community!

To register for this event visit http://bit.ly/NKFBreakfast.

Click here for more information: HYK_Invite_8x5_April 12 2018

Thank you to our SPONSORS!

 

Make a Difference 1 Step at a TIME – Salisbury Kidney Walk, May 6th

 

Salisbury Kidney Walk Returning to WinterPlace Park, May 6

Family-friendly event supports NKF’s local programs and services

The National Kidney Foundation Serving Maryland and Delaware will hold its 11th annual Salisbury Kidney Walk,
Sunday, May 6, at WinterPlace Park (6737 Blue Ribbon Road, 21804).

More than 500 people are expected to step up to raise awareness of kidney
disease, organ donation and the importance of early screening and healthy lifestyle for those at risk. As the 9th leading cause of death in the United States, kidney disease affects 9,300 Marylanders. With the increase in diabetes and high blood pressure, the numbers continue to climb.

“Participating in Kidney Walk can help save lives,” said Returning Event Chair Stephanie Elliott, MS, BSN, CNN
(renal services program manager with Peninsula Regional Medical Center). “NKF reminds walkers that it only takes two simple tests at your primary care doctor’s office to check for any red flags. That’s important, because kidneys are essential to keeping us alive and healthy.”

Event check in begins at 9 a.m. Following warm-up exercises and announcements by WMDT-TV Meteorologist Daniel Johnson, the Walk will kick off at 10 a.m. following ribbon cutting by Walk Ambassadors: Meghan, Wes and Charlotte Rice of Princess Anne.  An infant, Charlotte was born with no kidneys and has been on dialysis since was one-week-old. She is awaiting a kidney transplant.

Participants can choose from a 3-mile route or shorter path for strollers and wheelchairs. Adding to the fun, everyone can enjoy refreshments from Panera Bread, Giant and Starbucks, music by Moonbeam Entertainment and the Home Depot Kidney Kids Corner with face painting and games.

Funds raised through Kidney Walk will directly support NKF’s local patient services, education and research efforts.

Participation is free, but donations are encouraged. Everyone who raises a minimum of $100 will receive a
commemorative Walk t-shirt.
Additional recognition gifts – including jackets – will be awarded for meeting various fundraising levels.

For online registration, visit www.kidneywalk.org. To learn about sponsorship or volunteer opportunities, call 410.726.8732 to speak with Nicole Scharf, NKF’s associate executive director for the Eastern Shore of Maryland and Southern Delaware.

To date, top sponsors of the Salisbury Kidney Walk include Christiana Care Health System, Walgreens,
Peninsula Regional Medical Center
, Peninsula Nephrology Associates, Farmers Bank of Willards and Delmarva Kidney and Hypertension Specialists.

NKF will hold two additional events: the Southern Delaware Kidney Walk, Apr. 29, at Cape Henlopen State Park in Lewes and the Greater Baltimore Kidney Walk, May 6 at The Weinberg Y in Waverly. More than 6,000 people participated in the 2017 Maryland and Delaware Kidney Walk events, which raised $300,000.

Overall, Kidney Walk is the nation’s largest fundraiser to fight kidney disease. Held in nearly 100 communities, 85,000+ walkers raise more than $9 million to help kidney patients and their families each year, with more than 80 cents of every dollar raised directly supporting NKF programs and services. Azura Vascular Care and Relypsa are national multi-market sponsors and Fresenius Medical Care North America is a national sponsor. 

The National Kidney Foundation (NKF) is the largest, most comprehensive and longstanding organization dedicated to the awareness, prevention and treatment of kidney disease. For more information, visit www.kidney.org.

CliCK HERE FOR PHOTOS FROM LAST YEAR’S WALK.

C’MON & JOIN US at the Southern Delaware Kidney Walk, April 29th

FOR IMMEDIATE RELEASE:
Southern Delaware Kidney Walk
Returning to Cape Henlopen State Park, Apr. 29
Family- and pet-friendly event supports NKF’s local programs and services

LEWES, De. – The National Kidney Foundation of Maryland Serving Maryland and Delaware will hold its 10th annual Southern Delaware Kidney Walk, Sunday, Apr. 29, at Cape Henlopen State Park in Lewes (15099 Cape Henlopen Dr., 19958).

More than 600 people are expected to step up to raise awareness of kidney disease, organ donation and the importance of early screening and healthy lifestyle for those at risk. Kidney disease is the 9th leading cause of death in the United States. Approximately 2,175 Delawareans are on dialysis and more than 400 Delawareans are on the organ transplant waiting list. With the increase in diabetes and high blood pressure, the numbers continue to climb.

“Participating in Kidney Walk can help save lives,” said Returning Event Chair Kristy Ferracci, an FKC dialysis technician who donated a kidney to her husband 11 years ago. “NKF reminds walkers that it only takes two simple tests at your primary care doctor’s office to check for any red flags. That’s important, because kidneys are essential to keeping us alive and healthy.”

Check in begins at 10 a.m. at the Picnic Pavilion. Following a brief ceremony emceed by WBOC-TV Sussex County Bureau Chief Madeleine Overturf, the Walk kicks off at 11 a.m. Participants can choose from a 3-mile route or a shorter, patient-friendly route for strollers and wheelchairs. The event also features entertainment, refreshments from Starbucks, Giant and Panera, a petting zoo, photo booth, interactive vendor booths and the Kidney Kids Corner with face painting and games sponsored by Kohl’s.

Funds raised through Kidney Walk will directly support NKF’s local patient services, education and research efforts.

Participation is free, but donations are encouraged. Everyone who raises a minimum of $100 will receive a commemorative Walk t-shirt. Additional recognition gifts – including jackets – will be awarded for meeting various fundraising levels.

For online registration, visit www.kidneywalk.org. To learn about sponsorship or volunteer opportunities, call 410.726.8732 to speak with Nicole Scharf, NKF’s associate executive director for the Eastern Shore of Maryland and Southern Delaware.

To date, top sponsors of the Southern Delaware Kidney Walk include Beebe Healthcare, Christiana Care Health System, Nephrology Associates, Walgreens, Woody’s Dewey Beach and Dewey Beach Lions Club.

NKF will hold two additional events: the Greater Baltimore Kidney Walk at The Weinberg Y in Waverly and the Salisbury Kidney Walk at WinterPlace Park – both on May 6. More than 6,000 people participated in the 2017 Maryland and Delaware Kidney Walk events, which raised $300,000.

Overall, Kidney Walk is the nation’s largest fundraiser to fight kidney disease. Held in nearly 100 communities, 85,000+ walkers raise more than $9 million to help kidney patients and their families each year, with more than 80 cents of every dollar raised directly supporting NKF programs and services. Azura Vascular Care and Relypsa are national multi-market sponsors and Fresenius Medical Care North America is a national sponsor.

About NKF :  The National Kidney Foundation (NKF) is the largest, most comprehensive and longstanding organization dedicated to the awareness, prevention and treatment of kidney disease. For more information, visit www.kidney.org.

CLICK HERE FOR PHOTOS FROM LAST YEAR’S WALK.

Walk for a Great Cause – Greater Baltimore Kidney Walk, May 6th

 

For Immediate Release, Greater Baltimore Kidney Walk Moving to Weinberg Y in Waverly, May 6
Family-friendly event supports NKF’s local programs and services 

LUTHERVILLE, Md. – The National Kidney Foundation Serving Maryland and Delaware will hold its 16th annual Greater Baltimore Kidney Walk, Sunday, May 6, at The Weinberg Y in Waverly in Baltimore (900 E. 33rd St., 21218).

More than 5,000 people are expected to step up to raise awareness of kidney disease, organ donation and the importance of early screening and healthy lifestyle for those at risk. As the 9th leading cause of death in the United States, kidney disease affects 9,300 Marylanders. With the increase in diabetes and high blood pressure, the numbers continue to climb.

“Participating in Kidney Walk can help save lives,” said Returning Event Chair Lauren Asghari (founding partner of Alderson Loop, LLC and an NKF board member). “NKF reminds walkers that it only takes two simple tests at your primary care doctor’s office to check for any red flags. That’s important, because kidneys are essential to keeping us alive and healthy.”

International Recording Artist Philadelphia Freeway, known for being signed to Jay-Z’s Roc Nation, will return as the Walk’s celebrity ambassador, who will pose for pictures and sign autographs. A recipient of the National Kidney Foundation Patient Advocacy Award, he also will give a special Rap performance and showcase Free Will, a documentary detailing his battle with kidney disease and giving fans a personal, behind-the-scenes look of his life and career.

“Think Free (free from kidney disease) and Live Hope (living donor needed). Living with Kidney Disease is an everyday battle for myself and 101,000 beautiful people currently on the national kidney transplant waiting list,” Freeway said. “Walk with me and the Philly Freedom Fighters at the Baltimore Kidney Walk as we learn about the benefits of being a living donor, make a donation to the Greater Baltimore Kidney Walk, raise CKD awareness and party with me and my team.”

Check in will begin at 9 a.m., when guests will be greeted by “The Band” Marching Unit, Captain Dee-Fense, Major Offense and Homer the Home Depot mascot. Walkers are encouraged to dress as their favorite comic book, cartoon, game or pop culture character.

Following warm-up exercises by Tisha Guthrie of Bringing Our Community Joy and a brief opening ceremony, the Walk will kick off at 10 a.m. Participants can choose from a 3-mile route or 1-mile path for strollers and wheelchairs.

Post-walk highlights/activities include a cool down by Tina Brown of Divine Fitness and Health Services, Inc., photobooth, fitness stations by MAC @ Harbor East and University of Maryland at Baltimore, vendor exhibits, the Home Depot KidsZone, facepainting, t-shirt decorating, prizes, giveaways and other fun ways to recognize kidney survivors and donors as superheroes.

Complimentary refreshments will be available and participants also can purchase items from the B’more Greek Grill, Jimmy’s Famous Seafood, 2 Bold Chefs and Kona Ice food trucks, which will donate 15 to 20 percent of sales to NKF.

Funds raised through Kidney Walk will directly support NKF’s local patient services, education and research efforts. Participation is free, but donations are encouraged. Everyone who raises a minimum of $100 will receive a commemorative Walk t-shirt. Additional recognition gifts – including jackets – will be awarded for meeting various fundraising levels.

For online registration, visit www.kidneywalk.org. To learn about sponsorship or volunteer opportunities, call 410.494.8545 to speak with executive director, Pattie Dash.

Allmond & Company LLC is the presenting sponsor of the Greater Baltimore Kidney Walk. Mid-Atlantic Nephrology Associates is the platinum sponsor and will distribute baseball caps to kidney patients and transplant donors and recipients. Top local sponsors include Alderson Loop, BG&E, Independent Dialysis Foundation, Inc., Kelly & Associates Insurance Group/KELLY Payroll (KELLY), Northern Pharmacy and University of Maryland Medical Center.

NKF will hold two additional events: the Southern Delaware Kidney Walk, Apr. 29, at Cape Henlopen State Park in Lewes and the Salisbury Kidney Walk, May 6 at WinterPlace Park. More than 6,000 people participated in the 2017 Maryland and Delaware Kidney Walk events, which raised $300,000.

Overall, Kidney Walk is the nation’s largest fundraiser to fight kidney disease. Held in nearly 100 communities, 85,000+ walkers raise more than $9 million to help kidney patients and their families each year, with more than 80 cents of every dollar raised directly supporting NKF programs and services. Azura Vascular Care and Relypsa are national multi-market sponsors and Fresenius Medical Care is a national sponsor.

 About NKF:  The National Kidney Foundation (NKF) is the largest, most comprehensive and longstanding organization dedicated to the awareness, prevention and treatment of kidney disease. For more information, visit www.kidney.org.

For past Walk photos, click here.

For interviews with Kidney Walk officials and/or Freeway, contact Caryn Sagal at caryn@lawrencehoward.com or 410.363.9583.