All posts by Pattie Dash

Donne Melton’s Story

On June 2, Dundalk resident Donne Melton participated in The National Kidney Foundation Serving Maryland and Delaware’s 9th annual Rappel for Kidney Health.

“I will be rappelling off of a 38-story building,” Melton told the Eagle before the event.

For Melton, the cause is personal.
At 26, he began to feel unbearable symptoms like fatigue.

After a visit to Johns Hopkins University, doctors discovered blood in Melton’s urine.

Once doctors did more investigating, they noticed his kidney creatine was elevated, leading them to diagnose Melton with kidney disease.

“When I found out I had kidney disease, my whole life changed,” Melton said.

A biopsy showed dead scar tissues and that Melton’s kidney was only working at 50 percent.

“I was told that I could live with that, but it was beyond repair,” Melton said.

Eight years later, Melton began to have shortness of breath and similar symptoms he suffered years ago.

Melton’s mother took him to Franklin Square Hospital, where they discovered his kidney was only operating at 20 percent.

After being evaluated for a week, doctors determined that he needed to go on dialysis.

Feeling discouraged, Melton called his parents for advice; they said he needed to accept the dialysis treatment.

Before starting dialysis, Melton underwent surgery where they placed a catheter into his chest and a dialysis fistula into his left arm.

As Melton advanced in treatment, he had to take 15 to 20 pills, twice a day.

Melton stopped working.

“When you’re on dialysis, there’s a lot that you can’t do,” Melton said.  “It’s like a job,” he added.

Melton woke up every day at 5:15 am to make it to his appointments for six years.

“I couldn’t travel like I use to. I had to close my cleaning business and put my entertainment company on hold because I didn’t have the energy, or the mind set to keep it going.” Melton said.

Eventually, Melton registered to be on the kidney donor list at Johns Hopkins Hospital and Georgetown University Hospital.

To get on both lists, he had to get evaluated, take a classes about getting a transplant and then make sure his blood work and weight were at a certain level.

For every transplant list that Melton wanted to be on, he had to go through that process.

He was on the Johns Hopkins Hospital list for three years and the Georgetown University Hospital list for three months.

Unexpectedly, Georgetown University Hospital called him saying they found a match for a kidney transplant.

It took him two to three hours to get there after the call.

Doctors performed the transplant, and it was successful.

According to Melton, even though he is no longer on dialysis, he still has to take 10 to 15 pills twice a day to make sure his levels are normal, but it was worth it.

“My advice to anyone who is facing a difficult health situation is to collect all the information that is needed, get support from your loved ones and take action to save your life,” Melton said.

This is Melton’s first time rappelling, although he was scared he knows it is for a good cause.

For more on the National Kidney Foundation, visit http://www.kidneymd.org/.

 

Western Maryland Ride

 

Join US in Cumberland, Maryland at Canal Place for the 2018 Ride  Event!

When: Saturday, September 29, 2018
Where: Canal Place and Great Allegheny Passage
Time: Registration begins at 9:00am, the event ends at 2:00pm

Unite with your community, friends, and family to support those in need while enjoying a fun, exciting day at the Kidney Ride.

Reconnect with nature in the forested ridges of Cumberland, Maryland where you can expect to see more bikes than cars!
This adventure is for all ages and abilities. From recreational to expert riders, there is something for everyone.

Each cyclist who donates or raises $100.00 or more will receive an event t-shirt!

Join us for the “after-party” with live entertainment and activities for kids!

Route Information:

There are three different route options:

  • 16-mile option for the Beginner Cyclist
  • 32 miles for the Intermediate Cyclist
  • 44 miles for the Advanced Cyclist

Note: The 16 mile options requires a Ride on the Western Maryland Railroad train to Frostburg, riders will bike back down to Cumberland. There is a $50 cost to add to your registration page if this option is selected.

Interested in sponsoring this event? View the sponsorship opportunities offered for this event – Ride Sponsor benefits 2018_FY19. 

Questions? Contact Pattie Dash, Executive Director at pattie.dash@kidney.org or call 410.494.8545 for more information.

 Pictured: (L) NKFMDDE Board Member, Mark Salvo and 
NKFMDDE Board Chair, Paul Grill. 

 

Gout and Chronic Kidney Disease

Gout and CKD

People who have chronic kidney disease (CKD) are at increased risk for gout and often are unaware of this risk.

If left untreated, gout can lead to serious health issues. The information on the following pages will provide education and awareness materials to help patients with kidney disease minimize the impact of gout, as well as, inform medical professionals with tools created using the latest research so they can better help their patients.

Patients: Includes information for patients about gout, hyperuricemia and kidney disease for patients, including an informative quiz, facts about gout, videos, infographic, a link to a mobile app and more. LEARN MORE

PROFESSIONALS: Includes information about gout, hyperuricemia and kidney disease for healthcare providers, including clinical bulletins, videos, professional survey results and outcomes report, plus other related educational resources. LEARN MORE

Rappel 2018 – It’s NOT TOO LATE to DONATE!

Rappel for Kidney Health

We’ve extended the deadline to support! Did you miss the event? No worries, you can still support individuals and/or teams until June 30th!

Patients suffering with kidney disease need YOUR support. To donate now click here!

CKD Kidney Patient, Michelle, says, “The National Kidney Foundation Serving Maryland & Delaware has been a source of hope and inspiration for me. As a single mother suffering with kidney disease – being on dialysis three days a week for four hours a day , financially hindered my ability to support my family. NKFMDDE’s Patient Emergency Assistance program helped me ensure I had transportation to and from dialysis! THANK YOU!”

HUGE THANKS TO ALL OUR SUPPORTERS! 

All to Support Patients and the Community

How will you join the fight?

 Your Ideas. Your Passion. Your Way.

Create your own event to raise funds and hope for the 30 million Americans battling kidney disease. Celebrate an anniversary, honor a loved one, or push yourself with a 10k — Team Kidney is about what inspires YOU to become a part of the NKF’s national community mobilizing against kidney disease.

To learn more about Team Kidney and how you can raise awareness and support a great cause click here!

Kidney Story: Amari Luster

Team Captain of Molly’s Monsters for the Kidney Walk

This amazing family/friends have been participating in the Kidney Walk for 5 years now. They came up with the name Molly’s Monsters when she was sick and would say, ” The monsters are good monsters and they’re trying to make me better.”  

Here is her story:

“Amari was diagnosed with hydronephrosis when she was born her right kidney was in large the first year of her life was spent on antibiotics and lots of testing to check the urine flow bladder and kidney function.

Amari had surgery done on May 9th 2013 a month after her first birthday to remove the bottom right part of the enlarged kidney. Since then and has been up and down. Whenever she has a fever we have to make sure it’s not her kidneys. Which causes us to have to go through a lot of urine samples, X-rays and blood work.

As a mom it is very tough at times knowing that there is something going on in your child’s body that you have no control over. Especially when she gets fevers and they won’t break with Tylenol or Ibuprofen and you just have to wait for the antibiotic to kick in to get some type of relief.

We also do the walk because I lost my grandmother Christine (she passed away before I was born) to kidney failure and I had my Aunt Shirley passed away from kidney cancer. I also have a cousin Davon Steele and a friend Mykeisha Staton who are both on dialysis and waiting on the Kidney donor list.”

Join Molly’s Monsters at this years Kidney Walk to help them in our mission to end kidney disease.

Register Here

Watch Out For Trouble

Signs your kidneys or heart are in trouble!

  1.   Puffy eyes

    If your eyes are consistently swollen, especially in the morning, take note. This has been linked with kidney and heart disease.Because puffy eyes are linked with many other conditions, kidney disease and heart disease are often overlooked.

  2.   High blood pressure

    High blood pressure (hypertension) is a leading cause of heart attacks, strokes and chronic kidney disease. Controlling high blood pressure by losing excess weight, exercising, not smoking, cutting back on salt intake and taking high blood pressure medications reduces the risk of these complications. Even borderline high blood pressure, or pre-hypertension, should be taken seriously, as it can inflict kidney damage.

  3.   Swelling around your extremities

    The kidneys filter wastes from the blood and remove excess water from the body via urine. When the kidneys aren’t doing their job, this fluid can stay in the system instead of being excreted. Swelling around the hands, feet, and ankles may be associated with kidney or heart failure and shouldn’t be dismissed.

  4.  Protein or blood in the urine

    Urinalysis or urine testing is used to look for abnormalities such as an excess amount of protein, blood, pus, bacteria or sugar. A urine test can help to detect a variety of kidney and urinary tract disorders, including chronic kidney disease, diabetes, bladder infections and kidney stones. A trace of one type of protein, albumin in urine (albuminuria) is an early sign of chronic kidney disease. Persistent amounts of albumin and other proteins in the urine (proteinuria) indicate kidney damage. The presence of albumin is also a risk factor for cardiovascular events and death.

 

 

Sante 2018: Restaurant Winners

Restaurant Winners: Sante 2018

On March 15, 2018 the NKFMDDE brought back their beloved event Sante were our guests had the opportunity to try amazing food from local Baltimore chefs and vote on what they enjoyed most along with celebrity judges. The categories that our guests voted on were: Best Overall, People’s Choice, Most Creative Dish, and Best Dessert.

  1. Best Overall went to Copper Kitchen who served House-Made Porchetta grilled rapini, pistachio pesto garlic & chili jus.
  2. People’s Choice went to Cunningham’s who served Country fried chicken thighs with corn bread croutons and smokey cayenne honey butter. 
  3. Most Creative Dish went to George Martins GrillFire who served Green Eggs and Ham- truffle egg yolks, bread and butter pickles, crispy prosciutto, lava salt, and Guinness reduction.
  4. Best Dessert went to Fresh Fork Kitchen who served Sous vide cheesecake with a Meringue mouse and marshmallow S’mores Panna Cotta. 

Thank you to all of the restaurants that participated in these wonderful evening! We are excited to see who will participate and be our winners next year.