All posts by Pattie Dash

Drive for Dialysis

What is Drive for Dialysis?

It is one of NKF’s new programs that allow your office to provide patients in your community with care packages to brighten their spirits and make the long hours of treatment a little more bearable.

HOW DOES IT WORK?

NKF makes it easy to maximize your impact:

  • Provide materials to assemble care packages from the comfort of your office
  • Curate a program to inspire and engage employee volunteers
  • Pair your organization with a community-based dialysis clinic(s)
  • Enhance your wellness program with access to NKF resources
  • Provide custom online registration form, promotional posters to maximize staff participation

WHY HOST A DRIVE FOR DIALYSIS?

  • Demonstrate commitment to community impact
  • Reach employee engagement goals
  • Enhance brand reputation and capacity to attract new customers
  • Honor a staff member/loved one affected by kidney disease with a hands-on,team-building activity
  • Access kidney health and wellness resources.

For thousands of individuals facing kidney failure, dialysis is a lifeline. It not only extends life, but also enhances its quality by improving appetite, energy levels, and other symptoms. However, spending up to 4 hours per day, 3-4 days per week sitting in the same chair, in the same room can be mentally and physically taxing. You can help.

 

Join us for The Maryland Council on Renal Nutrition 12th Biennial Conference

Join us for The Maryland Council on Renal Nutrition 12th Biennial Conference

Wednesday, September 26, 2018
8:30am to 4:00pm (Registration opens at 7:45am)
DoubleTree by Hilton
5485 Twin Knolls Road
Columbia, MD 21045
The National Kidney Foundation Serving Maryland & Delaware (NKFMDDE) provides important programs
and services for kidney patients and their families, local communities and health professionals. As part of the
foundation, the Maryland Council on Renal Nutrition (MD-CRN) is made up of professionals working to educate
patients and help manage nutrition related problems of patients with renal failure.

Most members are dietitians working in clinical settings including dialysis centers, transplant programs, diabetes education clinics, hospitals, and nursing homes. Educational programs are crucial in maintaining up-to-date knowledge in this rapidly changing field.

The Maryland Council on Renal Nutrition presents the 12th Biennial Renal Nutrition Conference to be held on Wednesday, September 26, 2018 at the DoubleTree by Hilton in Columbia, Maryland. With a history of success,
we have grown to over 125 attendees and attract both renal and non-renal dietitians from the
Baltimore/Washington Metro area.

All proceeds from the conference help fund the NKF Serving Maryland & Delaware’s Nutritional Supplement
Program for patients with a nutritional and financial need. Exhibitor and sponsorship opportunities are available.
Early registration is strongly recommended. Registration fee includes breakfast, lunch, refreshments, parking and registration materials.

To register as an attendee OR exhibitor, please visit kidney.org/MDCRNConference.  For more information for Exhibitor’s, click here.

 

 

Match Your Gift!

Let Your Company Double
or Triple Your Impact!

Many employers sponsor matching gift programs to match charitable contributions made by their employees. Gifts from employees’ spouses and retirees may also qualify for a match. Employee matching gift programs are corporate giving programs.

If you volunteer with us, your company may also offer a volunteer grant program.

Here’s an example. Let’s say you work for Verizon and donate $100 to the National Kidney Foundation. Verizon’s matching gift policy has a minimum gift requirement of $25 and matches at a 1:1 ratio.  After you submit your matching gift form, Verizon will double your donation by also writing a check for $100. Gifts from employees’ spouses and retirees may also qualify for a match. It’s a quick and easy way to double your contribution!

Search here to see if your company will match your gift, and find everything you need to apply.

To learn more about matching gifts with your company, contact your human resources department.

National Kidney Foundation Tax-ID or EIN # 13-1673104

Thank You Representative Jaime Herrera Beutler (R-WA)

June 26, 2018
Quotes for attribution to
National Kidney Foundation

“The House Committee on Appropriations will include language requested by Representative Jaime Herrera Beutler (R-WA) to clarify that living organ donors can take time-off through the Family and Medical Leave Act. The National Kidney Foundation applauds Representative Herrera Beutler for championing the cause of living organ donation and for her leadership in bringing this forward.”

“The language will be contained in the Committee Report to the Fiscal Year 2019 Appropriations Bill for the Departments of Labor, Health and Human Services, Education and Related Agencies. The provision requests the Department of Labor to give notice on its website, or in other public communications, that living donors are eligible for family medical leave when they donate an organ to another person.  Representative Herrera Beutler’s efforts will remove a significant barrier for prospective organ donors who may not step forward if they are afraid to lose their job during their recovery period after surgery.”

“The National Kidney Foundation is proud to have aided Representative Herrera Beutler on this provision.  On behalf of nearly 100,000 Americans waiting for a kidney, we sincerely honor and thank her for her commitment to alleviating some of the barriers faced by living organ donors.  It is only by removing these barriers that we can increase living organ donation and give patients a second chance at life.”

Living organ donation not only saves lives, it saves money. Each year, Medicare spends $87,000 per dialysis patient and less than half, $32,500, for a transplant patient. Encouraging living organ donation by providing job protection for employees who become organ donors is a smart business decision and the right thing to do.”

The Big Ask The Big Give Sponsored by University of Maryland Transplant Center


The National Kidney Foundation Serving Maryland and Delaware announces new component of Annual Partnership with University of Maryland Medical Center – The Big Ask The Big Give Workshop for individuals needing a kidney transplant.
Join US on Sunday, September 16, 2018!

The Big Ask: The Big Give workshop in Baltimore will kick into overdrive on Sunday, September 16, 2018 with workshops on living kidney donation. The workshops are designed to help waitlisted kidney patients find a living donor by offering proven strategies to increase comfort in approaching others about donation.

Created for kidney patients, family members, friends, and potential living donors, the workshop is held in partnership with our local transplant center hospitals as well as our local organ procurement organization. Check out the link below to register for Greater Baltimore’s 2018 The Big Ask: The Big Give workshop!

Whether you need a kidney transplant or you are thinking of donating yours to someone in need, consider participating in The Big Ask: The Big Give workshops. It could begin a life-saving conversation. For more information, please contact Pattie Dash, Executive Director, at the National Kidney Foundation office Serving Maryland and Delaware at 410.494.8545.

Do you need a kidney transplant? Or do you have a family member or friend who needs a kidney? This workshop is for you! While it can be overwhelming to ask someone to consider donation, we can help. In this interactive workshop, you’ll learn the best, most effective strategies and tips for finding a living donor.

This free 4-hour workshop will teach kidney patients, families, and friends how to:

  • Find a living kidney donor
  • Educate family and friends about living donor kidney transplant
  • Tell your story through social media outlets and other channels

Click the MORE INFO button for the downloadable flier!     

Sunday, September 16, 2018
12:00pm to 5:00pm
Registration and lunch begins at 11:30am
Location: University of Maryland
Southern Management Campus Center
621 West Lombard Street
Baltimore, MD 21201
Parking is included upon registration if needed.

For information about this event contact Jessica Quintilian, Associate Executive Director Email: Jessica.quinitilian@kidney.org or Telephone: 410.494.8545.

Donne Melton’s Story

On June 2, Dundalk resident Donne Melton participated in The National Kidney Foundation Serving Maryland and Delaware’s 9th annual Rappel for Kidney Health.

“I will be rappelling off of a 38-story building,” Melton told the Eagle before the event.

For Melton, the cause is personal.
At 26, he began to feel unbearable symptoms like fatigue.

After a visit to Johns Hopkins University, doctors discovered blood in Melton’s urine.

Once doctors did more investigating, they noticed his kidney creatine was elevated, leading them to diagnose Melton with kidney disease.

“When I found out I had kidney disease, my whole life changed,” Melton said.

A biopsy showed dead scar tissues and that Melton’s kidney was only working at 50 percent.

“I was told that I could live with that, but it was beyond repair,” Melton said.

Eight years later, Melton began to have shortness of breath and similar symptoms he suffered years ago.

Melton’s mother took him to Franklin Square Hospital, where they discovered his kidney was only operating at 20 percent.

After being evaluated for a week, doctors determined that he needed to go on dialysis.

Feeling discouraged, Melton called his parents for advice; they said he needed to accept the dialysis treatment.

Before starting dialysis, Melton underwent surgery where they placed a catheter into his chest and a dialysis fistula into his left arm.

As Melton advanced in treatment, he had to take 15 to 20 pills, twice a day.

Melton stopped working.

“When you’re on dialysis, there’s a lot that you can’t do,” Melton said.  “It’s like a job,” he added.

Melton woke up every day at 5:15 am to make it to his appointments for six years.

“I couldn’t travel like I use to. I had to close my cleaning business and put my entertainment company on hold because I didn’t have the energy, or the mind set to keep it going.” Melton said.

Eventually, Melton registered to be on the kidney donor list at Johns Hopkins Hospital and Georgetown University Hospital.

To get on both lists, he had to get evaluated, take a classes about getting a transplant and then make sure his blood work and weight were at a certain level.

For every transplant list that Melton wanted to be on, he had to go through that process.

He was on the Johns Hopkins Hospital list for three years and the Georgetown University Hospital list for three months.

Unexpectedly, Georgetown University Hospital called him saying they found a match for a kidney transplant.

It took him two to three hours to get there after the call.

Doctors performed the transplant, and it was successful.

According to Melton, even though he is no longer on dialysis, he still has to take 10 to 15 pills twice a day to make sure his levels are normal, but it was worth it.

“My advice to anyone who is facing a difficult health situation is to collect all the information that is needed, get support from your loved ones and take action to save your life,” Melton said.

This is Melton’s first time rappelling, although he was scared he knows it is for a good cause.

For more on the National Kidney Foundation, visit http://www.kidneymd.org/.

 

Western Maryland Ride

 

Join US in Cumberland, Maryland at Canal Place for the 2018 Ride  Event!

When: Saturday, September 29, 2018
Where: Canal Place and Great Allegheny Passage
Time: Registration begins at 9:00am, the event ends at 3:00pm

Want to support a team or individual?
Click
here to make your tax-deductible donation today!

Unite with your community, friends, and family to support those in need while enjoying a fun, exciting day at the
Kidney Ride.

Reconnect with nature in the forested ridges of Cumberland, Maryland where you can expect to see more bikes than cars!

This adventure is for all ages and abilities. From recreational to expert riders, there is something for everyone.

Each cyclist who donates or raises $100.00 or more will receive an event t-shirt!

Join us for the “after-party” with live entertainment and activities for kids!

Route Information:

There are three different route options along with a NEW Road Route!

  • 16-mile option for the Beginner Cyclist
  • 32 miles for the Intermediate Cyclist
  • 44 miles for the Advanced Cyclist
  • NEW THIS YEAR! 38-mile Road Route
    Visit https://ridewithgps.com/routes/5744992 to learn more about this route option!

Note: The 16 mile options requires a Ride on the Western Maryland Railroad train to Frostburg, riders will bike back down to Cumberland. There is a cost to add to your registration page if this option is selected.

Registration fee for each participant is $25. There is a $5 fee for upright bicycles and $10 fee recumbent or tandem bikes.

Train Fees for the 1st 25 registrants:
Children 12 years of age and under: $15 per person
Adults/Youth 13 years of age and over: $30 per person

Prices day of the event:
– Children 12 years of age and under: $30 per person
– Adults/Youth 13 years of age and over: $46 per person

Interested in sponsoring this event? View the sponsorship opportunities offered for this event –
Ride Sponsor benefits 2018_FY19.

Questions? Contact Pattie Dash, Executive Director at pattie.dash@kidney.org or call 410.494.8545
for more information.

 Pictured: (L) NKFMDDE Board Member, Mark Salvo and 
NKFMDDE Board Chair, Paul Grill. 

 

Gout and Chronic Kidney Disease

Gout and CKD

People who have chronic kidney disease (CKD) are at increased risk for gout and often are unaware of this risk.

If left untreated, gout can lead to serious health issues. The information on the following pages will provide education and awareness materials to help patients with kidney disease minimize the impact of gout, as well as, inform medical professionals with tools created using the latest research so they can better help their patients.

Patients: Includes information for patients about gout, hyperuricemia and kidney disease for patients, including an informative quiz, facts about gout, videos, infographic, a link to a mobile app and more. LEARN MORE

PROFESSIONALS: Includes information about gout, hyperuricemia and kidney disease for healthcare providers, including clinical bulletins, videos, professional survey results and outcomes report, plus other related educational resources. LEARN MORE

Rappel 2018 – It’s NOT TOO LATE to DONATE!

Rappel for Kidney Health

We’ve extended the deadline to support! Did you miss the event? No worries, you can still support individuals and/or teams until June 30th!

Patients suffering with kidney disease need YOUR support. To donate now click here!

CKD Kidney Patient, Michelle, says, “The National Kidney Foundation Serving Maryland & Delaware has been a source of hope and inspiration for me. As a single mother suffering with kidney disease – being on dialysis three days a week for four hours a day , financially hindered my ability to support my family. NKFMDDE’s Patient Emergency Assistance program helped me ensure I had transportation to and from dialysis! THANK YOU!”

HUGE THANKS TO ALL OUR SUPPORTERS! 

All to Support Patients and the Community

How will you join the fight?

 Your Ideas. Your Passion. Your Way.

Create your own event to raise funds and hope for the 30 million Americans battling kidney disease. Celebrate an anniversary, honor a loved one, or push yourself with a 10k — Team Kidney is about what inspires YOU to become a part of the NKF’s national community mobilizing against kidney disease.

To learn more about Team Kidney and how you can raise awareness and support a great cause click here!